Your voice is your most powerful tool
Some symptoms of Sjögren’s disease may seem invisible, but people living with it shouldn’t have to feel that way. Living with Sjögren’s taught dancer and TV personality Carrie Ann Inaba that her most important role is showing up for herself.
When you SJÖ UP for yourself, you take control of your health and your story
Hear from the people living with and treating Sjögren’s disease
Watch the episodes to see how they choose to SJÖ UP—for themselves and each other.
“Advocate without apology”
As people living with Sjögren’s, Carrie Ann Inaba and Janet Church, CEO and President of Sjögren’s Foundation, discuss how Sjögren’s can feel invisible and why speaking up is a crucial part of care.
“I stopped asking for permission”
Carrie Ann Inaba sits down with life coach Jennifer Snook, who also lives with Sjögren’s, for a candid conversation on the real cost of staying quiet about your symptoms.
“No patient should feel unheard”
Rheumatologist Dr Tara Rizvi joins Carrie Ann Inaba to flip the doctor-patient dynamic and explore what gets lost in appointments, and how to build a care relationship where nothing goes unheard.
We can go from invisible to almost impossible to ignore
Even though there is currently no FDA-approved treatment, there are ongoing clinical trials and research to better understand Sjögren’s disease and develop effective treatment options.
Move the conversation forward
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