Sjögren’s disease can make you feel many things, and it’s not always easy to talk about. Living every day with a disease that can affect everything you do can be frustrating. Sometimes, even when you do speak up about what you’re going through, you can still feel unheard.
But being open with your rheumatologist about all the ways Sjögren’s disease affects you can help them see the whole picture—and find a treatment plan that works for you.
Connect your symptoms
Answering just a few questions here can help you have a more productive conversation with your doctor. We’ll use them to create a personalized conversation starter, along with a symptom checklist, for you to bring to your next appointment.
Here are a few things to think about before your next doctor’s visit:
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Speak to the right doctor
Sjögren’s is complicated. An ophthalmologist can help with dry eyes, and a dentist can help with dry mouth. But a rheumatologist can help you with all your Sjögren’s symptoms.
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Be detailed and specific
Sjögren’s disease can affect every part of your body, even if you’re not having a flare. Checking off which symptoms you experience and when you experience them can help guide conversations with your doctor.
To make the most of the time with your doctor, it may help to come prepared with a list of your symptoms, questions, and concerns.
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Advocate for yourself
Self-advocacy, or speaking up for yourself and your needs, is incredibly important. You are the only one who understands the full extent of your symptoms and how debilitating, intense, and impactful they are in your daily life. So don’t be afraid to speak up and ask questions.
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